Questions are, at last, being asked about the lack of care for people with Severe ME, following the death of Emily Gregg, a young policewoman, who became paralysed, bed-bound and spent much of her time in the dark, with ear protectors on, with no clear care pathway. The only available "specialist" service was located in a locked unit for people with mental health problems. The West Sussex Coroner conclusion was that awareness and care services for chronic fatigue syndrome were insufficient. She is reported as saying that she will write to the doctor about her “ concern nothing more was done to diagnose her illness." http://www.chichester.co.uk/ news/local/emsworth-police- officer-s-suicide-prompts- concern-over-care-1-6742298 We have been raising the issue of a lack of an appropriate service for people with Severe ME, for years, specifically that : The most ill and vulnerable who are often too ill to access any service are not ge...
